PATIENT COMMITMENT PLEDGE

WORLD SANFILIPPO AWARENESS DAY | NOVEMBER 16, 2026

Behind every diagnosis is a child racing against time. Behind every child is a family carrying the weight of care. Behind every family is a journey that deserves urgency, compassion, and hope.

On World Sanfilippo Awareness Day, I pledge to keep families living with Sanfilippo in mind in every decision, priority, and partnership—and to act in accordance with the weight they carry.

I PLEDGE TO:

• RECOGNIZE THE JOURNEY: Understand all that Sanfilippo brings, from the long search for a diagnosis to the gradual loss of a child’s abilities and the constant demands of caregiving, and let these realities inform everything I do.
• LISTEN TO FAMILIES: Prioritize the voices of patients and caregivers, including their experiences, worries, priorities, and hopes, and let what they share shape my thinking and my decisions.
• HONOR THE URGENCY: Remember what is at stake when choices are hard, deadlines are close, and priorities pull in different directions. For families living with Sanfilippo, time is precious.
• LEAD WITH ACTION: Turn commitment into progress. Take ownership of my role in speeding diagnosis, supporting families, and moving the Sanfilippo community forward.

Recognize. Listen. Honor. Lead.

Commitment to Sanfilippo Families is more than a pledge at Spruce Biosciences—it’s a pillar.

MY PATIENT-CENTERED COMMITMENT

I will carry the experiences of families living with Sanfilippo with me, beyond this day and into the conversations I have, the priorities I set, and the work I do each day.

One action I will take in my role over the next 90 days to put patients at the center is:

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Department

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Date: November 16, 2026

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